Charity Information

Down's Syndrome Association

Mission Statement

Who we are
We are the only organisation in this country focusing solely on all aspects of living successfully with Down’s syndrome. Since 1970, we have grown from being a local parent support group to a national charity with over 20,000 members, a national office in Teddington Middlesex, offices in Northern Ireland and Wales and a regional development team. Despite this, the organisation is run by a total staff of only 38 (many of them part time), and a network of around 100 regional volunteer-led support groups.

Our mission
We provide information and support for people with Down’s syndrome, their families and carers, and the professionals who work with them.
We strive to improve knowledge of the condition.
We champion the rights of people with Down’s syndrome.
What we do
Our organisation is divided into various teams, including:

Information - run the helpline; provide info about all aspects of living with Down's syndrome including welfare, education and health; advise new parents or anyone experiencing difficulties
Fundraising - responsible for raising money for the association through events, sponsorship and trusts
Communications - give key messages to the media, public and professionals; influence policy making; reponsible for external publications
Training - run courses throughout the UK for members, professionals and carers
Membership - responsible for all administration surrounding new members, existing members and affiliated groups

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Charity Contact Details x

Paul Zanon - Business Development Director

Tel: 0845 230 0372
Email: paul.zanon@downs-syndrome.org.uk

Registered Charity No: 1061474

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